August 1, 2015, at Chautauqua Park from 8:30am to 12:30pm.
Come support Parent Project Muscular Dystrophy and the Jason and Betty Vertin Family. We will have a fun morning filled with a 5k, kids activities, and a basket raffle. Don't miss it! Register now for for all events.
Max is 9 years old and is going into the 4th grade. He is doing very well. Max has been blessed to participate in a clinical drug trial for the past year and is benefiting from the medicine. Max is very mobile and only uses his new wheelchair for long distances. He still enjoys riding his bike and is playing baseball on a special team in Lincoln this summer. Max loves music and has taken piano and drum lessons. This summer he will participate in a theater production for the first time. In general, Max is a happy boy with a big personality and great sense of humor who bring his family and friends much joy!
Rowen is 6 years old will be a 1st grader. He is doing well and has the opportunity to participate in the same drug trial as his brother Max through a sibling access program. The Vertin family looks forward to seeing the same benefit for Rowen. Rowen is also very mobile and only uses his new wheelchair for long distances or towards the end of busy days. Although his mom encourages him to stay in and rest from his third recess at school, Rowen can usually be found at all three recesses!! He is also playing baseball on a team coached by his dad this summer. Rowen is very smart and loves school, animals, and being outside; but also enjoys quiet time reading or playing with his favorite toy.
Charlie is 4 and will be in his second year of preschool. Charlie has an opportunity to participate in the same drug trial as Max through the sibling access program. The family looks forward to Charlie benefitting from the medicine as well. Charlie likes school and easily makes new friends. He is very mobile, although he does tire out and uses a stroller for long distances. Charlie loves to play outside and to ride his tricycle and do anything his older brothers do. He is a happy boy who likes to make others laugh and almost always has a smile on his face.